One year ago my friend Brook and her husband Jake lost their infant daughter, Carynne to SMA (Spinal Muscular Atrophy). A day later, they lost her identical twin sister, Sydney to the same disease. THis was just a short month after getting the diagnosis in the first place. As a parent, I can't imagine the heartbreak they felt, watching their daughters struggle with this disease. Brook and Jake have been active in trying to raise awareness and funds for research in finding a cure for this horrible disease. SMA is the #1 genetic killer of young children. Right now there is not a cure. However, doctors believe that if funding is received a cure or at least a viable treatment is possible within five years. No parent should ever have to watch their child suffer and die. Let alone a second child.
Want to "Make My Monday"?
There is a way you can make a difference. A way you can help honor the memory of Sydney and Carynne. Please sign the Petition to Cure SMA. It will only take 30 seconds. You won't be inundated with spam mail. Every signature counts. I have blogged about this petition in the past. If you have thought about signing it, but haven't had the time, or planned to do it later, please sign it now. And remember those two beautiful girls who left this world all too soon.
Play along with Makes My Monday with Cheryl